Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study
Multiple sclerosis; Outcomes research
| Authors: | ; ; ; ; ; ; |
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| Format: | Article |
| Status: | Published version |
| Publication date: | 2024 |
| Country: | España |
| Institution: | Departament de Salut de la Generalitat de Catalunya (DS) |
| Repository: | Scientia. Dipòsit d'Informació Digital del Departament de Salut |
| OAI Identifier: | oai:scientiasalut.gencat.cat:11351/10993 |
| Online Access: | https://hdl.handle.net/11351/10993 |
| Access Level: | Open access |
| Keyword: | Esclerosi múltiple Telèfons intel·ligents Aplicacions mòbils DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis INFORMATION SCIENCE::Information Science::Computing Methodologies::Software::Mobile Applications INFORMATION SCIENCE::Information Science::Computing Methodologies::Computer Systems::Computers::Microcomputers::Computers, Handheld::Smartphone ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::soporte lógico (informática)::aplicaciones en aparatos electrónicos portátiles CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::sistemas informáticos::ordenadores::microordenadores::ordenadores de bolsillo::teléfono inteligente |
| _version_ | 1878741545768714240 |
|---|---|
| author | Oh, Jiwon |
| author2 | Capezzuto, Luca Kriara, Lito Schjodt-Eriksen, Jens van Beek, Johan Bernasconi, Corrado Montalban, Xavier |
| author2_role | author author author author author author |
| author_browse | Bernasconi, Corrado Capezzuto, Luca Kriara, Lito Montalban, Xavier Oh, Jiwon Schjodt-Eriksen, Jens van Beek, Johan |
| author_facet | Oh, Jiwon Capezzuto, Luca Kriara, Lito Schjodt-Eriksen, Jens van Beek, Johan Bernasconi, Corrado Montalban, Xavier |
| author_role | author |
| collection | Scientia. Dipòsit d'Informació Digital del Departament de Salut |
| description | Multiple sclerosis; Outcomes research |
| eu_rights_str_mv | openAccess |
| format | article |
| id | ES_e71d491b152bfddbbbb72d5ddcf7f26f |
| institution | Departament de Salut de la Generalitat de Catalunya (DS) |
| instname_str | Departament de Salut de la Generalitat de Catalunya (DS) |
| network_acronym_str | ES |
| network_name_str | España |
| oai_identifier_str | oai:scientiasalut.gencat.cat:11351/10993 |
| publishDate | 2024 |
| publishDateSort | 2024 |
| publisher | Nature Portfolio |
| publisherStr | Nature Portfolio |
| reponame_str | Scientia. Dipòsit d'Informació Digital del Departament de Salut |
| spelling | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study Oh, Jiwon Capezzuto, Luca Kriara, Lito Schjodt-Eriksen, Jens van Beek, Johan Bernasconi, Corrado Montalban, Xavier Esclerosi múltiple Telèfons intel·ligents Aplicacions mòbils DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis INFORMATION SCIENCE::Information Science::Computing Methodologies::Software::Mobile Applications INFORMATION SCIENCE::Information Science::Computing Methodologies::Computer Systems::Computers::Microcomputers::Computers, Handheld::Smartphone ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::soporte lógico (informática)::aplicaciones en aparatos electrónicos portátiles CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::sistemas informáticos::ordenadores::microordenadores::ordenadores de bolsillo::teléfono inteligente Multiple sclerosis; Outcomes research Esclerosis múltiple; Resultados de la investigación Esclerosi múltiple; Recerca de resultats Floodlight Open was a global, open-access, digital-only study designed to understand the drivers and barriers in deployment and use of a smartphone app in a naturalistic setting and broad study population of people with and without multiple sclerosis (MS). The study utilised the Floodlight Open app: a ‘bring-your-own-device’ solution that remotely measures a user’s mood, cognition, hand motor function, and gait and postural stability via smartphone sensor-based tests requiring active user input (‘active tests’). Levels of mobility of study participants (‘life-space measurement’) were passively measured. Study data from these tests were made available via an open-access platform. Data from 1350 participants with self-declared MS and 1133 participants with self-declared non-MS from 17 countries across four continents were included in this report. Overall, MS participants provided active test data for a mean duration of 5.6 weeks or a mean duration of 19 non-consecutive days. This duration increased among MS participants who persisted beyond the first week to a mean of 10.3 weeks or 36.5 non-consecutive days. Passively collected life-space measurement data were generated by MS participants for a mean duration of 9.8 weeks or 50.6 non-consecutive days. This duration increased to 16.3 weeks/85.1 non-consecutive days among MS participants who persisted beyond the first week. Older age, self-declared MS disease status, and clinical supervision as part of concomitant clinical research were all significantly associated with higher persistence of the use of the Floodlight Open app. MS participants performed significantly worse than non-MS participants on four out of seven active tests. The findings from this multinational study inform future research to improve the dynamics of persistence of use of digital monitoring tools and further highlight challenges and opportunities in applying them to support MS clinical care. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: F. Hoffmann-La Roche Ltd., Basel, Switzerland provided financial support for the study and publication of this manuscript. Nature Portfolio https://hdl.handle.net/11351/10993 |
| spellingShingle | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study Oh, Jiwon Esclerosi múltiple Telèfons intel·ligents Aplicacions mòbils DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis INFORMATION SCIENCE::Information Science::Computing Methodologies::Software::Mobile Applications INFORMATION SCIENCE::Information Science::Computing Methodologies::Computer Systems::Computers::Microcomputers::Computers, Handheld::Smartphone ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::soporte lógico (informática)::aplicaciones en aparatos electrónicos portátiles CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::sistemas informáticos::ordenadores::microordenadores::ordenadores de bolsillo::teléfono inteligente |
| status_str | publishedVersion |
| title | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study |
| title_full | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study |
| title_fullStr | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study |
| title_full_unstemmed | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study |
| title_short | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study |
| title_sort | Use of smartphone-based remote assessments of multiple sclerosis in Floodlight Open, a global, prospective, open-access study |
| topic | Esclerosi múltiple Telèfons intel·ligents Aplicacions mòbils DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis INFORMATION SCIENCE::Information Science::Computing Methodologies::Software::Mobile Applications INFORMATION SCIENCE::Information Science::Computing Methodologies::Computer Systems::Computers::Microcomputers::Computers, Handheld::Smartphone ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::soporte lógico (informática)::aplicaciones en aparatos electrónicos portátiles CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::sistemas informáticos::ordenadores::microordenadores::ordenadores de bolsillo::teléfono inteligente |
| topic_facet | Esclerosi múltiple Telèfons intel·ligents Aplicacions mòbils DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis INFORMATION SCIENCE::Information Science::Computing Methodologies::Software::Mobile Applications INFORMATION SCIENCE::Information Science::Computing Methodologies::Computer Systems::Computers::Microcomputers::Computers, Handheld::Smartphone ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::soporte lógico (informática)::aplicaciones en aparatos electrónicos portátiles CIENCIA DE LA INFORMACIÓN::Ciencias de la información::metodologías computacionales::sistemas informáticos::ordenadores::microordenadores::ordenadores de bolsillo::teléfono inteligente |
| url | https://hdl.handle.net/11351/10993 |