Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions

Background The Discrimination and Stigma Scale (DISC) is a patient-reported outcome measure which assesses experiences of discrimination among persons with a mental illness globally. Methods This study evaluated whether the psychometric properties of a short-form version, DISC-Ultra Short (DISCUS) (...

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Authors: Brohan E; Thornicroft G; Rüsch N; Lasalvia A; Campbell MM; Yalçinkaya-Alkar Ö; Lanfredi M; Ochoa S; Üçok A; Tomás C; Fadipe B; Sebes J; Fiorillo A; Sampogna G; Paula CS; Valverde L; Schomerus G; Klemm P; Ouali U; Castelein S; Alexová A; Oexle N; Guimarães PN; Sportel BE; Chang CC; Li J; Shanthi C; Reneses B; Bakolis I; Evans-Lacko S
Format: Article
Status:Published version
Publication date:2023
Country:España
Institution:Fundació Sant Joan de Déu
Repository:r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
OAI Identifier:oai:fsjd.fundanetsuite.com:p21331
Online Access:https://fsjd.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=21331
Access Level:Open access
Keyword:Discrimination
DISCUS
Global mental health
Psychometrics
Stigma
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author Brohan E
author2 Thornicroft G
Rüsch N
Lasalvia A
Campbell MM
Yalçinkaya-Alkar Ö
Lanfredi M
Ochoa S
Üçok A
Tomás C
Fadipe B
Sebes J
Fiorillo A
Sampogna G
Paula CS
Valverde L
Schomerus G
Klemm P
Ouali U
Castelein S
Alexová A
Oexle N
Guimarães PN
Sportel BE
Chang CC
Li J
Shanthi C
Reneses B
Bakolis I
Evans-Lacko S
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author_browse Alexová A
Bakolis I
Brohan E
Campbell MM
Castelein S
Chang CC
Evans-Lacko S
Fadipe B
Fiorillo A
Guimarães PN
Klemm P
Lanfredi M
Lasalvia A
Li J
Ochoa S
Oexle N
Ouali U
Paula CS
Reneses B
Rüsch N
Sampogna G
Schomerus G
Sebes J
Shanthi C
Sportel BE
Thornicroft G
Tomás C
Valverde L
Yalçinkaya-Alkar Ö
Üçok A
author_facet Brohan E
Thornicroft G
Rüsch N
Lasalvia A
Campbell MM
Yalçinkaya-Alkar Ö
Lanfredi M
Ochoa S
Üçok A
Tomás C
Fadipe B
Sebes J
Fiorillo A
Sampogna G
Paula CS
Valverde L
Schomerus G
Klemm P
Ouali U
Castelein S
Alexová A
Oexle N
Guimarães PN
Sportel BE
Chang CC
Li J
Shanthi C
Reneses B
Bakolis I
Evans-Lacko S
author_role author
collection r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
description Background The Discrimination and Stigma Scale (DISC) is a patient-reported outcome measure which assesses experiences of discrimination among persons with a mental illness globally. Methods This study evaluated whether the psychometric properties of a short-form version, DISC-Ultra Short (DISCUS) (11-item), could be replicated in a sample of people with a wide range of mental disorders from 21 sites in 15 countries/territories, across six global regions. The frequency of experienced discrimination was reported. Scaling assumptions (confirmatory factor analysis, inter-item and item-total correlations), reliability (internal consistency) and validity (convergent validity, known groups method) were investigated in each region, and by diagnosis group. Results 1195 people participated. The most frequently reported experiences of discrimination were being shunned or avoided at work (48.7%) and discrimination in making or keeping friends (47.2%). Confirmatory factor analysis supported a unidimensional model across all six regions and five diagnosis groups. Convergent validity was confirmed in the total sample and within all regions [ Internalised Stigma of Mental Illness (ISMI-10): 0.28-0.67, stopping self: 0.54-0.72, stigma consciousness: -0.32-0.57], as was internal consistency reliability (alpha = 0.74-0.84). Known groups validity was established in the global sample with levels of experienced discrimination significantly higher for those experiencing higher depression [Patient Health Questionnaire (PHQ)-2: p < 0.001], lower mental wellbeing [Warwick-Edinburgh Well-being Scale (WEMWBS): p < 0.001], higher suicidal ideation [Beck Hopelessness Scale (BHS)-4: p < 0.001] and higher risk of suicidal behaviour [Suicidal Ideation Attributes Scale (SIDAS): p < 0.001]. Conclusions The DISCUS is a reliable and valid unidimensional measure of experienced discrimination for use in global settings with similar properties to the longer DISC. It offers a brief assessment of experienced discrimination for use in clinical and research settings.
eu_rights_str_mv openAccess
format article
id ES_e70cea228ff7cc04f0d685ecdfd3811f
institution Fundació Sant Joan de Déu
instname_str Fundació Sant Joan de Déu
network_acronym_str ES
network_name_str España
oai_identifier_str oai:fsjd.fundanetsuite.com:p21331
publishDate 2023
publishDateSort 2023
publisher CAMBRIDGE UNIV PRESS
publisherStr CAMBRIDGE UNIV PRESS
reponame_str r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
spelling Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions Brohan E Thornicroft G Rüsch N Lasalvia A Campbell MM Yalçinkaya-Alkar Ö Lanfredi M Ochoa S Üçok A Tomás C Fadipe B Sebes J Fiorillo A Sampogna G Paula CS Valverde L Schomerus G Klemm P Ouali U Castelein S Alexová A Oexle N Guimarães PN Sportel BE Chang CC Li J Shanthi C Reneses B Bakolis I Evans-Lacko S Discrimination DISCUS Global mental health Psychometrics Stigma Background The Discrimination and Stigma Scale (DISC) is a patient-reported outcome measure which assesses experiences of discrimination among persons with a mental illness globally. Methods This study evaluated whether the psychometric properties of a short-form version, DISC-Ultra Short (DISCUS) (11-item), could be replicated in a sample of people with a wide range of mental disorders from 21 sites in 15 countries/territories, across six global regions. The frequency of experienced discrimination was reported. Scaling assumptions (confirmatory factor analysis, inter-item and item-total correlations), reliability (internal consistency) and validity (convergent validity, known groups method) were investigated in each region, and by diagnosis group. Results 1195 people participated. The most frequently reported experiences of discrimination were being shunned or avoided at work (48.7%) and discrimination in making or keeping friends (47.2%). Confirmatory factor analysis supported a unidimensional model across all six regions and five diagnosis groups. Convergent validity was confirmed in the total sample and within all regions [ Internalised Stigma of Mental Illness (ISMI-10): 0.28-0.67, stopping self: 0.54-0.72, stigma consciousness: -0.32-0.57], as was internal consistency reliability (alpha = 0.74-0.84). Known groups validity was established in the global sample with levels of experienced discrimination significantly higher for those experiencing higher depression [Patient Health Questionnaire (PHQ)-2: p < 0.001], lower mental wellbeing [Warwick-Edinburgh Well-being Scale (WEMWBS): p < 0.001], higher suicidal ideation [Beck Hopelessness Scale (BHS)-4: p < 0.001] and higher risk of suicidal behaviour [Suicidal Ideation Attributes Scale (SIDAS): p < 0.001]. Conclusions The DISCUS is a reliable and valid unidimensional measure of experienced discrimination for use in global settings with similar properties to the longer DISC. It offers a brief assessment of experienced discrimination for use in clinical and research settings. CAMBRIDGE UNIV PRESS https://fsjd.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=21331
spellingShingle Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
Brohan E
Discrimination
DISCUS
Global mental health
Psychometrics
Stigma
status_str publishedVersion
title Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
title_full Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
title_fullStr Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
title_full_unstemmed Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
title_short Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
title_sort Measuring discrimination experienced by people with a mental illness: replication of the short-form DISCUS in six world regions
topic Discrimination
DISCUS
Global mental health
Psychometrics
Stigma
topic_facet Discrimination
DISCUS
Global mental health
Psychometrics
Stigma
url https://fsjd.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=21331