An international consensus definition of thewish to hasten death and Its related factors

Abstract Background The desire for hastened death or wish to hasten death (WTHD) that is experienced by some patients with advanced illness is a complex phenomenon for which no widely accepted definition exists. This lack of a common conceptualization hinders understanding and cooperation between cl...

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Authors: Voltz R. (Ramón)|||/items/2af9dd4e-aa17-47d1-8a8b-96e661d7f1ba; Villavicencio-Chavez C.(Christian)|||/items/3c818387-73ca-437f-89bd-5bdb254958b2; Trelis J. (Jordi)|||/items/4840f07c-b56f-4d02-9805-b0d4761c36f5; Tomas-Sabado J. (Joaquin)|||/items/5a62746a-fd83-4a97-8416-586b501db028; Schroepfer T. (Tracy)|||/items/62e8ca17-51f9-4b2b-95f6-b72146c6ad23; Rosenfeld B. (Barry)|||/items/2a8f0751-a2b1-4c43-b659-2b51c175ca79; Rodin G. (Gary)|||/items/41bbdaa8-6822-45f4-b1b1-cbf77dcdfddf; Nabal, M. (María)|||/items/36640879-b37f-4f9f-b021-3367889c0af4; Materstvedt L. J. (Lars Johan)|||/items/a4ef2e65-47d9-4df8-956b-b4ee6404b205; Maier M. A (Markus A)|||/items/beb8b99a-fc13-4766-826e-5fff814a1ac8; Limonero J. T. (Joaquín T)|||/items/a8f81f5f-cd9a-440a-acf9-c79d72363eaa; Lichtenfeld S. (Stephanie)|||/items/c74b8503-93ff-4f61-9a9c-a6cd6f58b393; Gastmans C. (Chris)|||/items/28a7f54b-1e73-426b-a869-ca8d6edbac8d; Frerich G. (Gerrit)|||/items/e88a1f19-e9ed-4ab7-b40f-25bfce9b9a0b; Deliens, L. (Luc)|||/items/f3ab8b9e-d81b-48b0-b64f-6ebc3db5781f; Cuervo M. A. (Miguel Angel)|||/items/aabc0f41-c428-49ae-8a8f-f169d728b7f2; Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680; Breitbart W. (William)|||/items/327a51a0-5a1c-41bf-a322-87741a6dcde0; Bellido-Perez M. (Mercedes)|||/items/b272ca64-84c2-46e1-b661-47aa02e8ba72; Aradilla-Herrero A. (Amor)|||/items/13c4b154-3308-4164-959a-830bcde0e321; Altisent R. (Rogelio)|||/items/e93efe40-b934-4128-9484-9cad61084912; Alonso-Babarro, A. (Alberto)|||/items/978d35e0-ee0e-4dad-8527-5b49bbb70ec0; Porta-Sales, J. (Josep)|||/items/0d9340eb-2f44-4dd1-a8ae-1fbfa88104bf; Monforte-Royo, C. (Cristina)|||/items/acfe6978-36c2-444e-9776-896986d9a9d7; Balaguer, A. (Albert)|||/items/a9e5cca9-ff23-4cae-8970-ee79dca02f12
Format: Article
Publication date:2016
Country:España
Institution:Universidad de Navarra
Repository:Dadun. Depósito Académico Digital de la Universidad de Navarra
Language:English
OAI Identifier:oai:dadun.unav.edu:10171/39698
Online Access:https://hdl.handle.net/10171/39698
Access Level:Open access
Keyword:International
Death
Hastened death
Palliative
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author Voltz R. (Ramón)|||/items/2af9dd4e-aa17-47d1-8a8b-96e661d7f1ba
author2 Villavicencio-Chavez C.(Christian)|||/items/3c818387-73ca-437f-89bd-5bdb254958b2
Trelis J. (Jordi)|||/items/4840f07c-b56f-4d02-9805-b0d4761c36f5
Tomas-Sabado J. (Joaquin)|||/items/5a62746a-fd83-4a97-8416-586b501db028
Schroepfer T. (Tracy)|||/items/62e8ca17-51f9-4b2b-95f6-b72146c6ad23
Rosenfeld B. (Barry)|||/items/2a8f0751-a2b1-4c43-b659-2b51c175ca79
Rodin G. (Gary)|||/items/41bbdaa8-6822-45f4-b1b1-cbf77dcdfddf
Nabal, M. (María)|||/items/36640879-b37f-4f9f-b021-3367889c0af4
Materstvedt L. J. (Lars Johan)|||/items/a4ef2e65-47d9-4df8-956b-b4ee6404b205
Maier M. A (Markus A)|||/items/beb8b99a-fc13-4766-826e-5fff814a1ac8
Limonero J. T. (Joaquín T)|||/items/a8f81f5f-cd9a-440a-acf9-c79d72363eaa
Lichtenfeld S. (Stephanie)|||/items/c74b8503-93ff-4f61-9a9c-a6cd6f58b393
Gastmans C. (Chris)|||/items/28a7f54b-1e73-426b-a869-ca8d6edbac8d
Frerich G. (Gerrit)|||/items/e88a1f19-e9ed-4ab7-b40f-25bfce9b9a0b
Deliens, L. (Luc)|||/items/f3ab8b9e-d81b-48b0-b64f-6ebc3db5781f
Cuervo M. A. (Miguel Angel)|||/items/aabc0f41-c428-49ae-8a8f-f169d728b7f2
Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680
Breitbart W. (William)|||/items/327a51a0-5a1c-41bf-a322-87741a6dcde0
Bellido-Perez M. (Mercedes)|||/items/b272ca64-84c2-46e1-b661-47aa02e8ba72
Aradilla-Herrero A. (Amor)|||/items/13c4b154-3308-4164-959a-830bcde0e321
Altisent R. (Rogelio)|||/items/e93efe40-b934-4128-9484-9cad61084912
Alonso-Babarro, A. (Alberto)|||/items/978d35e0-ee0e-4dad-8527-5b49bbb70ec0
Porta-Sales, J. (Josep)|||/items/0d9340eb-2f44-4dd1-a8ae-1fbfa88104bf
Monforte-Royo, C. (Cristina)|||/items/acfe6978-36c2-444e-9776-896986d9a9d7
Balaguer, A. (Albert)|||/items/a9e5cca9-ff23-4cae-8970-ee79dca02f12
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author_browse Alonso-Babarro, A. (Alberto)|||/items/978d35e0-ee0e-4dad-8527-5b49bbb70ec0
Altisent R. (Rogelio)|||/items/e93efe40-b934-4128-9484-9cad61084912
Aradilla-Herrero A. (Amor)|||/items/13c4b154-3308-4164-959a-830bcde0e321
Balaguer, A. (Albert)|||/items/a9e5cca9-ff23-4cae-8970-ee79dca02f12
Bellido-Perez M. (Mercedes)|||/items/b272ca64-84c2-46e1-b661-47aa02e8ba72
Breitbart W. (William)|||/items/327a51a0-5a1c-41bf-a322-87741a6dcde0
Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680
Cuervo M. A. (Miguel Angel)|||/items/aabc0f41-c428-49ae-8a8f-f169d728b7f2
Deliens, L. (Luc)|||/items/f3ab8b9e-d81b-48b0-b64f-6ebc3db5781f
Frerich G. (Gerrit)|||/items/e88a1f19-e9ed-4ab7-b40f-25bfce9b9a0b
Gastmans C. (Chris)|||/items/28a7f54b-1e73-426b-a869-ca8d6edbac8d
Lichtenfeld S. (Stephanie)|||/items/c74b8503-93ff-4f61-9a9c-a6cd6f58b393
Limonero J. T. (Joaquín T)|||/items/a8f81f5f-cd9a-440a-acf9-c79d72363eaa
Maier M. A (Markus A)|||/items/beb8b99a-fc13-4766-826e-5fff814a1ac8
Materstvedt L. J. (Lars Johan)|||/items/a4ef2e65-47d9-4df8-956b-b4ee6404b205
Monforte-Royo, C. (Cristina)|||/items/acfe6978-36c2-444e-9776-896986d9a9d7
Nabal, M. (María)|||/items/36640879-b37f-4f9f-b021-3367889c0af4
Porta-Sales, J. (Josep)|||/items/0d9340eb-2f44-4dd1-a8ae-1fbfa88104bf
Rodin G. (Gary)|||/items/41bbdaa8-6822-45f4-b1b1-cbf77dcdfddf
Rosenfeld B. (Barry)|||/items/2a8f0751-a2b1-4c43-b659-2b51c175ca79
Schroepfer T. (Tracy)|||/items/62e8ca17-51f9-4b2b-95f6-b72146c6ad23
Tomas-Sabado J. (Joaquin)|||/items/5a62746a-fd83-4a97-8416-586b501db028
Trelis J. (Jordi)|||/items/4840f07c-b56f-4d02-9805-b0d4761c36f5
Villavicencio-Chavez C.(Christian)|||/items/3c818387-73ca-437f-89bd-5bdb254958b2
Voltz R. (Ramón)|||/items/2af9dd4e-aa17-47d1-8a8b-96e661d7f1ba
author_facet Voltz R. (Ramón)|||/items/2af9dd4e-aa17-47d1-8a8b-96e661d7f1ba
Villavicencio-Chavez C.(Christian)|||/items/3c818387-73ca-437f-89bd-5bdb254958b2
Trelis J. (Jordi)|||/items/4840f07c-b56f-4d02-9805-b0d4761c36f5
Tomas-Sabado J. (Joaquin)|||/items/5a62746a-fd83-4a97-8416-586b501db028
Schroepfer T. (Tracy)|||/items/62e8ca17-51f9-4b2b-95f6-b72146c6ad23
Rosenfeld B. (Barry)|||/items/2a8f0751-a2b1-4c43-b659-2b51c175ca79
Rodin G. (Gary)|||/items/41bbdaa8-6822-45f4-b1b1-cbf77dcdfddf
Nabal, M. (María)|||/items/36640879-b37f-4f9f-b021-3367889c0af4
Materstvedt L. J. (Lars Johan)|||/items/a4ef2e65-47d9-4df8-956b-b4ee6404b205
Maier M. A (Markus A)|||/items/beb8b99a-fc13-4766-826e-5fff814a1ac8
Limonero J. T. (Joaquín T)|||/items/a8f81f5f-cd9a-440a-acf9-c79d72363eaa
Lichtenfeld S. (Stephanie)|||/items/c74b8503-93ff-4f61-9a9c-a6cd6f58b393
Gastmans C. (Chris)|||/items/28a7f54b-1e73-426b-a869-ca8d6edbac8d
Frerich G. (Gerrit)|||/items/e88a1f19-e9ed-4ab7-b40f-25bfce9b9a0b
Deliens, L. (Luc)|||/items/f3ab8b9e-d81b-48b0-b64f-6ebc3db5781f
Cuervo M. A. (Miguel Angel)|||/items/aabc0f41-c428-49ae-8a8f-f169d728b7f2
Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680
Breitbart W. (William)|||/items/327a51a0-5a1c-41bf-a322-87741a6dcde0
Bellido-Perez M. (Mercedes)|||/items/b272ca64-84c2-46e1-b661-47aa02e8ba72
Aradilla-Herrero A. (Amor)|||/items/13c4b154-3308-4164-959a-830bcde0e321
Altisent R. (Rogelio)|||/items/e93efe40-b934-4128-9484-9cad61084912
Alonso-Babarro, A. (Alberto)|||/items/978d35e0-ee0e-4dad-8527-5b49bbb70ec0
Porta-Sales, J. (Josep)|||/items/0d9340eb-2f44-4dd1-a8ae-1fbfa88104bf
Monforte-Royo, C. (Cristina)|||/items/acfe6978-36c2-444e-9776-896986d9a9d7
Balaguer, A. (Albert)|||/items/a9e5cca9-ff23-4cae-8970-ee79dca02f12
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description Abstract Background The desire for hastened death or wish to hasten death (WTHD) that is experienced by some patients with advanced illness is a complex phenomenon for which no widely accepted definition exists. This lack of a common conceptualization hinders understanding and cooperation between clinicians and researchers. The aim of this study was to develop an internationally agreed definition of the WTHD. Methods Following an exhaustive literature review, a modified nominal group process and an international, modified Delphi process were carried out. The nominal group served to produce a preliminary definition that was then subjected to a Delphi process in which 24 experts from 19 institutions from Europe, Canada and the USA participated. Delphi responses and comments were analysed using a pre-established strategy. Findings All 24 experts completed the three rounds of the Delphi process, and all the proposed statements achieved at least 79% agreement. Key concepts in the final definition include the WTHD as a reaction to suffering, the fact that such a wish is not always expressed spontaneously, and the need to distinguish the WTHD from the acceptance of impending death or from a wish to die naturally, although preferably soon. The proposed definition also makes reference to possible factors related to the WTHD. Conclusions This international consensus definition of the WTHD should make it easier for clinicians and researchers to share their knowledge. This would foster an improved understanding of the phenomenon and help in developing strategies for early therapeutic intervention.
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spelling An international consensus definition of thewish to hasten death and Its related factors Voltz R. (Ramón)|||/items/2af9dd4e-aa17-47d1-8a8b-96e661d7f1ba Villavicencio-Chavez C.(Christian)|||/items/3c818387-73ca-437f-89bd-5bdb254958b2 Trelis J. (Jordi)|||/items/4840f07c-b56f-4d02-9805-b0d4761c36f5 Tomas-Sabado J. (Joaquin)|||/items/5a62746a-fd83-4a97-8416-586b501db028 Schroepfer T. (Tracy)|||/items/62e8ca17-51f9-4b2b-95f6-b72146c6ad23 Rosenfeld B. (Barry)|||/items/2a8f0751-a2b1-4c43-b659-2b51c175ca79 Rodin G. (Gary)|||/items/41bbdaa8-6822-45f4-b1b1-cbf77dcdfddf Nabal, M. (María)|||/items/36640879-b37f-4f9f-b021-3367889c0af4 Materstvedt L. J. (Lars Johan)|||/items/a4ef2e65-47d9-4df8-956b-b4ee6404b205 Maier M. A (Markus A)|||/items/beb8b99a-fc13-4766-826e-5fff814a1ac8 Limonero J. T. (Joaquín T)|||/items/a8f81f5f-cd9a-440a-acf9-c79d72363eaa Lichtenfeld S. (Stephanie)|||/items/c74b8503-93ff-4f61-9a9c-a6cd6f58b393 Gastmans C. (Chris)|||/items/28a7f54b-1e73-426b-a869-ca8d6edbac8d Frerich G. (Gerrit)|||/items/e88a1f19-e9ed-4ab7-b40f-25bfce9b9a0b Deliens, L. (Luc)|||/items/f3ab8b9e-d81b-48b0-b64f-6ebc3db5781f Cuervo M. A. (Miguel Angel)|||/items/aabc0f41-c428-49ae-8a8f-f169d728b7f2 Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680 Breitbart W. (William)|||/items/327a51a0-5a1c-41bf-a322-87741a6dcde0 Bellido-Perez M. (Mercedes)|||/items/b272ca64-84c2-46e1-b661-47aa02e8ba72 Aradilla-Herrero A. (Amor)|||/items/13c4b154-3308-4164-959a-830bcde0e321 Altisent R. (Rogelio)|||/items/e93efe40-b934-4128-9484-9cad61084912 Alonso-Babarro, A. (Alberto)|||/items/978d35e0-ee0e-4dad-8527-5b49bbb70ec0 Porta-Sales, J. (Josep)|||/items/0d9340eb-2f44-4dd1-a8ae-1fbfa88104bf Monforte-Royo, C. (Cristina)|||/items/acfe6978-36c2-444e-9776-896986d9a9d7 Balaguer, A. (Albert)|||/items/a9e5cca9-ff23-4cae-8970-ee79dca02f12 International Death Hastened death Palliative Abstract Background The desire for hastened death or wish to hasten death (WTHD) that is experienced by some patients with advanced illness is a complex phenomenon for which no widely accepted definition exists. This lack of a common conceptualization hinders understanding and cooperation between clinicians and researchers. The aim of this study was to develop an internationally agreed definition of the WTHD. Methods Following an exhaustive literature review, a modified nominal group process and an international, modified Delphi process were carried out. The nominal group served to produce a preliminary definition that was then subjected to a Delphi process in which 24 experts from 19 institutions from Europe, Canada and the USA participated. Delphi responses and comments were analysed using a pre-established strategy. Findings All 24 experts completed the three rounds of the Delphi process, and all the proposed statements achieved at least 79% agreement. Key concepts in the final definition include the WTHD as a reaction to suffering, the fact that such a wish is not always expressed spontaneously, and the need to distinguish the WTHD from the acceptance of impending death or from a wish to die naturally, although preferably soon. The proposed definition also makes reference to possible factors related to the WTHD. Conclusions This international consensus definition of the WTHD should make it easier for clinicians and researchers to share their knowledge. This would foster an improved understanding of the phenomenon and help in developing strategies for early therapeutic intervention. https://hdl.handle.net/10171/39698
spellingShingle An international consensus definition of thewish to hasten death and Its related factors
Voltz R. (Ramón)|||/items/2af9dd4e-aa17-47d1-8a8b-96e661d7f1ba
International
Death
Hastened death
Palliative
title An international consensus definition of thewish to hasten death and Its related factors
title_full An international consensus definition of thewish to hasten death and Its related factors
title_fullStr An international consensus definition of thewish to hasten death and Its related factors
title_full_unstemmed An international consensus definition of thewish to hasten death and Its related factors
title_short An international consensus definition of thewish to hasten death and Its related factors
title_sort An international consensus definition of thewish to hasten death and Its related factors
topic International
Death
Hastened death
Palliative
topic_facet International
Death
Hastened death
Palliative
url https://hdl.handle.net/10171/39698