Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries

Objectives To describe and explore differences in formal regulations around sick leave and work disability (WD) for patients with rheumatoid arthritis (RA), as well as perceptions by rheumatologists and patients on the system's performance, across European countries. Methods We conducted three cross...

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Authors: Putrik P; Ramiro S; Guillemin F; Péntek M; Sivera F; Sokka T; de Wit M; Woolf AD; Zink A; Andersone D; Berghea F; Butrimiene I; Brouwer S; Cassar K; Charalambous P; Caporali R; Deseatnicova E; Damjanov NS; Finckh A; FitzGerald O; Gröndal G; Gobejishjvili N; Gluszko P; Hirsch M; Jovanovic I; Vencovský J; Janssens X; Keszei AP; Kovarova M; Kull M; Cunha Miranda L; Mayer M; Misevska-Percinkova S; Inanc N; Nadashkevich O; Petersson IF; Puolakka K; Rojkovich B; Radner H; Szabados F; Slobodin G; Shirinsky I; Soroka N; Sidiropoulos P; Shumnalieva R; Sokolovic S; Shukurova S; Tafaj A; Tomšic M; Uhlig T; Verstappen SMM; Boonen A
Format: Article
Status:Published version
Publication date:2019
Country:España
Institution:Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
Repository:r-FISABIO. Repositorio Institucional de Producción Científica
OAI Identifier:oai:fisabio.fundanetsuite.com:p7988
Online Access:https://fisabio.portalinvestigacion.com/publicaciones/7988
Access Level:Open access
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author Putrik P
author2 Ramiro S
Guillemin F
Péntek M
Sivera F
Sokka T
de Wit M
Woolf AD
Zink A
Andersone D
Berghea F
Butrimiene I
Brouwer S
Cassar K
Charalambous P
Caporali R
Deseatnicova E
Damjanov NS
Finckh A
FitzGerald O
Gröndal G
Gobejishjvili N
Gluszko P
Hirsch M
Jovanovic I
Vencovský J
Janssens X
Keszei AP
Kovarova M
Kull M
Cunha Miranda L
Mayer M
Misevska-Percinkova S
Inanc N
Nadashkevich O
Petersson IF
Puolakka K
Rojkovich B
Radner H
Szabados F
Slobodin G
Shirinsky I
Soroka N
Sidiropoulos P
Shumnalieva R
Sokolovic S
Shukurova S
Tafaj A
Tomšic M
Uhlig T
Verstappen SMM
Boonen A
author2_role author
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author_browse Andersone D
Berghea F
Boonen A
Brouwer S
Butrimiene I
Caporali R
Cassar K
Charalambous P
Cunha Miranda L
Damjanov NS
Deseatnicova E
Finckh A
FitzGerald O
Gluszko P
Gobejishjvili N
Gröndal G
Guillemin F
Hirsch M
Inanc N
Janssens X
Jovanovic I
Keszei AP
Kovarova M
Kull M
Mayer M
Misevska-Percinkova S
Nadashkevich O
Petersson IF
Puolakka K
Putrik P
Péntek M
Radner H
Ramiro S
Rojkovich B
Shirinsky I
Shukurova S
Shumnalieva R
Sidiropoulos P
Sivera F
Slobodin G
Sokka T
Sokolovic S
Soroka N
Szabados F
Tafaj A
Tomšic M
Uhlig T
Vencovský J
Verstappen SMM
Woolf AD
Zink A
de Wit M
author_facet Putrik P
Ramiro S
Guillemin F
Péntek M
Sivera F
Sokka T
de Wit M
Woolf AD
Zink A
Andersone D
Berghea F
Butrimiene I
Brouwer S
Cassar K
Charalambous P
Caporali R
Deseatnicova E
Damjanov NS
Finckh A
FitzGerald O
Gröndal G
Gobejishjvili N
Gluszko P
Hirsch M
Jovanovic I
Vencovský J
Janssens X
Keszei AP
Kovarova M
Kull M
Cunha Miranda L
Mayer M
Misevska-Percinkova S
Inanc N
Nadashkevich O
Petersson IF
Puolakka K
Rojkovich B
Radner H
Szabados F
Slobodin G
Shirinsky I
Soroka N
Sidiropoulos P
Shumnalieva R
Sokolovic S
Shukurova S
Tafaj A
Tomšic M
Uhlig T
Verstappen SMM
Boonen A
author_role author
collection r-FISABIO. Repositorio Institucional de Producción Científica
description Objectives To describe and explore differences in formal regulations around sick leave and work disability (WD) for patients with rheumatoid arthritis (RA), as well as perceptions by rheumatologists and patients on the system's performance, across European countries. Methods We conducted three cross-sectional surveys in 50 European countries: one on work (re-)integration and social security (SS) system arrangements in case of sick leave and long-term WD due to RA (one rheumatologist per country), and two among approximately 15 rheumatologists and 15 patients per country on perceptions regarding SS arrangements on work participation. Differences in regulations and perceptions were compared across categories defined by gross domestic product (GDP), type of social welfare regime, European Union (EU) membership and country RA WD rates. Results Forty-four (88%) countries provided data on regulations, 33 (75%) on perceptions of rheumatologists (n=539) and 34 (77%) on perceptions of patients (n=719). While large variation was observed across all regulations across countries, no relationship was found between most of regulations or income compensation and GDP, type of SS system or rates of WD. Regarding perceptions, rheumatologists in high GDP and EU-member countries felt less confident in their role in the decision process towards WD (beta=-0.5 (95% CI -0.9 to -0.2) and beta=-0.5 (95% CI -1.0 to -0.1), respectively). The Scandinavian and Bismarckian system scored best on patients' and rheumatologists' perceptions of regulations and system performance. Conclusions There is large heterogeneity in rules and regulations of SS systems across Europe in relation to WD of patients with RA, and it cannot be explained by existing welfare regimes, EU membership or country's wealth.
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instname_str Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
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network_name_str España
oai_identifier_str oai:fisabio.fundanetsuite.com:p7988
publishDate 2019
publishDateSort 2019
publisher ELSEVIER
publisherStr ELSEVIER
reponame_str r-FISABIO. Repositorio Institucional de Producción Científica
spelling Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries Putrik P Ramiro S Guillemin F Péntek M Sivera F Sokka T de Wit M Woolf AD Zink A Andersone D Berghea F Butrimiene I Brouwer S Cassar K Charalambous P Caporali R Deseatnicova E Damjanov NS Finckh A FitzGerald O Gröndal G Gobejishjvili N Gluszko P Hirsch M Jovanovic I Vencovský J Janssens X Keszei AP Kovarova M Kull M Cunha Miranda L Mayer M Misevska-Percinkova S Inanc N Nadashkevich O Petersson IF Puolakka K Rojkovich B Radner H Szabados F Slobodin G Shirinsky I Soroka N Sidiropoulos P Shumnalieva R Sokolovic S Shukurova S Tafaj A Tomšic M Uhlig T Verstappen SMM Boonen A Objectives To describe and explore differences in formal regulations around sick leave and work disability (WD) for patients with rheumatoid arthritis (RA), as well as perceptions by rheumatologists and patients on the system's performance, across European countries. Methods We conducted three cross-sectional surveys in 50 European countries: one on work (re-)integration and social security (SS) system arrangements in case of sick leave and long-term WD due to RA (one rheumatologist per country), and two among approximately 15 rheumatologists and 15 patients per country on perceptions regarding SS arrangements on work participation. Differences in regulations and perceptions were compared across categories defined by gross domestic product (GDP), type of social welfare regime, European Union (EU) membership and country RA WD rates. Results Forty-four (88%) countries provided data on regulations, 33 (75%) on perceptions of rheumatologists (n=539) and 34 (77%) on perceptions of patients (n=719). While large variation was observed across all regulations across countries, no relationship was found between most of regulations or income compensation and GDP, type of SS system or rates of WD. Regarding perceptions, rheumatologists in high GDP and EU-member countries felt less confident in their role in the decision process towards WD (beta=-0.5 (95% CI -0.9 to -0.2) and beta=-0.5 (95% CI -1.0 to -0.1), respectively). The Scandinavian and Bismarckian system scored best on patients' and rheumatologists' perceptions of regulations and system performance. Conclusions There is large heterogeneity in rules and regulations of SS systems across Europe in relation to WD of patients with RA, and it cannot be explained by existing welfare regimes, EU membership or country's wealth. ELSEVIER https://fisabio.portalinvestigacion.com/publicaciones/7988
spellingShingle Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
Putrik P
status_str publishedVersion
title Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
title_full Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
title_fullStr Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
title_full_unstemmed Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
title_short Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
title_sort Patients with rheumatoid arthritis facing sick leave or work disability meet varying regulations: a study among rheumatologists and patients from 44 European countries
url https://fisabio.portalinvestigacion.com/publicaciones/7988